Race, Medicine, and Public Policy

This week, the New England Journal of Medicine reported the results of a remarkable study on an experimental drug that dramatically improved treatment of blacks with heart disease. BiDil is now on course to become the first "Race Drug"––a prospect fanning debate among the public, scientists, and government officials responsible for providing guidance on funding and research protocols.

Genetic researchers are increasingly challenging the "one size fits all" treatment model that has advocated that therapies for a particular ailment should be applied to all patients regardless of ethnic background. There is now overwhelming evidence that some genetic diseases target racial or ethnic groups. For example, various breast cancer mutations are most common in Jews, and cystic fibrosis disproportionately afflicts whites. Bone marrow transplants are more successful when donor and recipient are matched by population and genetic characteristics. These population-based differences have spawned the field of pharmacogenomics, which incorporates genetic research to develop therapies that can be tailored to the small but meaningful bio-chemical differences that often distinguish races and ethnic groups.

While many researchers see exploration of differences among races as a way to learn more about complex diseases, some scientists and ethicists worry that focusing on biological differences could resurrect discredited notions of racial medicine, thereby stigmatizing minority patients and leading to inferior health care. This conference will address the social public policy implications of this new wave of genetic research into race and medicine.

About the Author

 

Sally
Satel

 

Jon
Entine
  • Jon Entine, a former Emmy-winning producer for NBC News and ABC News, researches and writes about corporate responsibility and science and society. His books include No Crime But Prejudice: Fischer Homes, the Immigration Fiasco, and Extra-Judicial Prosecution (TFG Books, May 2009), about prosecutorial excesses; Abraham's Children: Race, Identity, and the DNA of the Chosen People (Grand Central Publishing, 2007), which focuses on the genetics of race; Let Them Eat Precaution: How Politics Is Undermining the Genetic Revolution in Agriculture (AEI Press, 2006), about the genetic modification of food and farming; Pension Fund Politics: The Dangers of Socially Responsible Investing (AEI Press, 2005), which reveals the effects of social investing on pension funds; and the best-selling Taboo: Why Black Athletes Dominate Sports and Why We're Afraid to Talk about It (Public Affairs, 2000), based on an award-winning NBC News documentary. Currently, Mr. Entine is an adviser to Global Governance Watch (GGW), a project that examines transparency and accountability issues at the United Nations (UN), in nongovernmental organizations (NGOs), and in related international organizations. GGW also analyzes the impact of UN agencies and NGOs on government and corporations. He is also working on a book exploring the revolutionary impact of genomic research on medical treatments and traditional perceptions of human limits and capabilities.
  • Phone: 513-319-8388
    Email: jentine@aei.org
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